Welcome to the WillaSTRONG Foundation!
Supporting children and families affected by pediatric brain cancer and other complex conditions affecting the brain & spine.
WillaSTRONG
About Willa
On April 26, 2017, our world was shattered when our daughter Willa was diagnosed with a brain tumour at just 2½ years old. What began as neck pain turned into every parent’s worst nightmare after an MRI revealed an aggressive brain cancer called Anaplastic Ependymoma.
Over the next seven years, Willa faced more than most people could imagine: brain and spine surgeries, radiation, countless hospital stays, rehabilitation, and unimaginable challenges. Through it all, she showed extraordinary courage, resilience, and strength. Willa was full of sass, spitfire, and determination. Her personality was far bigger than her tiny body. Even in her hardest moments, she remained a happy, brave little girl who loved anything Disney, dancing, and spending time with her family and friends.
In 2019, after a recurrence spread to her spine, Willa underwent a major brain surgery and intensive treatment that left her medically fragile and dependent on full-time care. Our lives changed completely, but Willa never stopped fighting. She taught us how precious life is and what true bravery looks like. She inspired so many people who followed every step of her journey.
In April 2024, after a long and incredibly difficult journey, Willa passed away peacefully at home, surrounded by love. She was only 9 years old. Willa’s story can’t be written in just a few paragraphs. You can read more about her journey under Willa's story on the website, Forever 9.